Registration in the Danish Donor Registry: Barriers in the 18-29 Year Olds

Cecilie Louise Hoffmeyer Jørgensen & Louise Hammerstrøm

Student thesis: Master thesis

Abstract

The organ donation shortage is well known in the literature and has been researched extensively, with many different perspectives since the need for organs is an increasing societal problem. The literature is despite its many perspectives, missing one with a Danish context, with specific focus on a target group and with a focus primarily on the registration act. Therefore, this thesis examines the barriers underlying in the Danish 18-29-year olds in relation to them registering their decisions in the Danish Donor Registry. Based on primarily five interviews with five Danish informants in the age of 18-29 the analysis reveals that barriers which prevents these informants from registration mainly are one or several of the following barriers: the procedure for registration, death association, lack of priority, missing articulation, lack of knowledge, irrational thoughts and lastly negative feelings associated with the act of registration. An interesting finding in this analysis was that despite the informants’ barriers, these barriers did not seem to affect their decision of wanting to donate their organs. Furthermore, the thesis examines solutions reported by the informants by which non-government-organizations could be taken into consideration when trying to eliminate these barriers and getting more to register in the Danish Donor Registry. The solutions to which would affect the informants to registrate their decision mentioned: the creation of a motivation for informants, a personal relation and with the help of places with high authority force people to make a decision or making this decision automatically by presumed consent. Concerning presumed consent, the informants were sceptic due to ethical issues regarding free choice. Also, elements of exposure were mentioned to be emotional or create a personal relation to the informants and further that the subject is articulated in general affect the informants. Lastly the findings showed that the procedure should be easier or could be different personnel coming to workplaces or universities where the informants could register on the spot. The thesisis closed by critical discussion of the theoretical and practical implications of the findings and methods used. Furthermore, the thesis suggests interesting elements for future research in this field to focus on.

EducationsMSc in Business Administration and Organizational Communication, (Graduate Programme) Final Thesis
LanguageDanish
Publication date2019
Number of pages193